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CLAMS Multiple Sclerosis BB

Welcome to the CLAMS MS BB hosted by JoAnne of the CLAMS organization. Please post often. JoAnne will monitor this BB on a daily basis. Thank You

CLAMS Multiple Sclerosis BB
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I have MS and I am raising a daughter with multiple disabilities

Hi everyone, I am new here, was looking at Montels site and linked to this. It seems pretty cool, Went to chat room I was only one there, I think.!?
I was diagnosed April fools day (4-1-00) Not a fun prank..anyway I always say laughter will heal anything!!!!!
My question I am 42 and have MS, my daughter is 22 and still lives at home with me and my hubby, she has multiple disabilities (needs quite abit of care). Just wondering if there is anybody else out there in the same situation and what they do to get a little help? Is there some programs? I live in Illinois.
Thanks

Re: I have MS and I am raising a daughter with multiple disabilities

that is sad i am sorry

Re: I have MS and I am raising a daughter with multiple disabilities

Hi deb,
i have ms too, just found out a few months ago i've had it for 8 yrs or so now.
I have 5 kids under 17 and two have disabilities.... ADHD and Encroperiesis (probably spelled wrong... l0l) mostly my older kids help, my husband doesnt much he cant accept i'm sick so he pretends everything is normal.
I found alot of my kids friends help out for small ewards and praise, even alot of the yound generation around 19 - 23 help out if I show I accept them. who cares if they have pink hair.

i have a alot of days where i can't get out of bed with the vertigo and weakness. and now the flu symptoms from the new treatment.

good luck
if you need someone to talk to i'm here
lily